Candida In Your Head

Why doesn't candida get national attention?
I don't understand why there are so few medical professionals who are willing to take this candida situation seriously!!!! What can we do to change that? I am soooo sick of doctors looking at me with that look that says "its in your head"! And I am really sick to death of being sick!! Seriously what can we do to get this condition some attention???? And why are the majority of MDs so damn convinced that this conidtion isn't real?

national attention?
I dont know.

THe Doctors seem to be in denial. Its probably the most common problem in their patients.

Re: National attention?
I did make it to reputedly one of UKs leading mycologists a Dr Denning ..He told me that the medical profession do know that something is going on within the general population , but he went on its just that we do not know precisely what it is , we havent a clue He did know, I spent over the twelve months or so that I was In his care a number of hours telling the taleHe ducked the issue , telling me to catch an easy jet to Spain & continue get my own medication.

Without backing from him & others like him , the average GP will not touch candida [&co-infections]

We need to make waves , its clear that until we do we be totally ignored .

One vehicle we could use is the British Candida society unfortunately Christine Tomlinson who runs it has other ideas about getting candid recognised as an endemic problem, Looks to me that Christine s tactics amount to appealing to the medical profession via the pages of the information sheets you get with the subscription I have offered to work as a political agent for the society organising a campaign to make the medics act ..my offer was declined .

The society was set up with the help from the Daily Mail , so the press are aware. Is it a case of ..with friends like Christine ,you dont need many enemies

So all you in the society ,make your views known , or If enough are interested set up a group dedicated to gaining recognition ..Any takers?

Heres my web site the Nysatin trials can be found within http://yeast-candida-infections-uk.co.uk/

And The situation as my article

Mystery Illness?
This is an illness where 5.000 people in the UK have banded together to share information. Up to 3,000 people a day log onto an Internet forum looking for help. In fact this forum attracts more traffic than any other Internet health forum. This illness is a hot topic. What's the subject that has the attention of so many people? A very odd one ---intestinal yeast infection. Is it a crucial player in health? Does it really make a person this fatigued and ill? If so, why can't you just take a medication to kill the yeast and make it all go away?
More and more people are realising intestinal yeast and bacteria can be a major contributor to many illnesses. Over 70% of the immune system is in the intestines. What lives in the intestines interacts with the immune system. Altered gut flora from what is regarded as normal can cause depression, mental confusion, anxiety and fatigue. The intestinal flora is even a major contributor to autism. Yes, autism isn't the totally genetic or emotional problem that was once believed. Many of these children are losing their diagnosis of autism as the gut and immune system are healed.
What is it like to suffer an intestinal yeast infection? Well, initially, a person may fear the worst --- cancer or a degenerative disease. The symptoms are both appalling and progressive. Chronic fatigue, cognitive problems and other symptoms develop to the point where the sufferer descends into a Zombie like state that is truly frightening. At a time when the person needs all mental faculties to fight this illness, the intestinal yeast and bacteria take away the person's ability to even express themselves adequately. Fatigue and brain-fog make the person so very vulnerable.
Most people assume that doctors are right on top of this situation. Yet patients complain that doctors know very little about how to alter the flora of the intestines. Worse yet, patients run into doctors that are unwilling to even acknowledge the fact that intestinal flora can be a problem. With the exception of a small number of specialists and brave general practitioners, the medical profession has turned a blind eye to this condition. It is the patients who recognise the symptoms and who are demanding action.
So what's to be done? People with intestinal Candida overgrowth may have yeast and fungus throughout their body. They are contagious with yeast, and associated co-infections, bacteria, virus's etc. Many GP 's would consider acknowledging and treating the condition in line with the treatment protocols specialist doctors have successfully used for the last two decades [at least]. Except it is not yet considered standard practice.
We live in a very litigious world where empirical treatment is a thing of the past. First-line doctors want the security of knowing hospitals will pick up the case if things get tricky. Everyone cautiously waits for the formal blessings of experts before proceeding. People are left suffering with chronic and often-unexplained illness, they are commonly labelled as suffering with a syndrome of unknown cause. Band aid anti-inflammatory's, and pain killers are often prescribed but they only temporary take away the pain, and never address the cause which stems from the Yeast infection with the associated toxic overload. Its clear that until the experts formally recognize this illness, patients are left without effective help from the medical establishment. And as the Candidiasis [term for chronic yeast infection] pipeline is running at full bore many more thousands will suffer as a direct result of senior doctors head in the sand stance with this illness.

Re: National attention?
hi paul, is there anywhere in the uk u can buy nystatin powder and logenses? (sp?)

Re: National attention?
Hi Steve , No unfortunately ,there was talk at one time of making Nysatin over the counter as it is one of the safest drugs around ..but not yet is seems ..Search international pharmacy I think they supply you need more than is quoted the study, thats if you believe Dr Cranton , which I do .. Paul

thanks paul (n/m)


Re: National attention? to Paul UK
Hi Paul,

I always enjoy reading your posts.

You would think Christine of the Candida Society would welcome your offer. It's really weird that she didn't. Is it a political thing? If so, why? Is it a conspiracy thing? If so, why?

Why does the medical profession ignore this? Is it because there isn't an answer? I've read some things in the Harvard Health Newsletter about fungal infections. It's the medical professions nightmare! Fungus is tenacious. Works insidiously. Destroys completely. Weapons are like throwing stones at an army tank.

Excellent website, by-the-way.

Re: National attention? to Paul UK
Hi Pace , Im glad you like my posts.& site Im not sure why my offer was rejected or why the society is not used to mount a political campaign..I know Christine had other health problems at the time ..but surely that makes the offer of help more attractive .I would have thought there was a moral issue to run a political campaign. It doesnt sit well with me to know people are desperate , I am fortunate in having the resources to fight this , but most havent .Perhaps its her baby..dont know, perhaps Christine will tell us ..

There is an answer to Candida my symptoms left me back end of 2001 they havent returned ..Its the co-infections that are proving tenacious .The medical profession ignores this because it suits them ..They bush us under the carpet and will continue to do so until we act collectively to publicise our plight. And lets face it the coming plight for many thousands more Paul



Time to get the PI Attorneys involved
"He ducked the issue , telling me to catch an easy jet to Spain & continue get my own medication"

Two factors drive the practice of medicine - FEAR and GREED

Recent research shows the potential for class action greater than that of the tobacco and asbestos

http://www.medicineatmichigan.org/magazine/2004/fall/huron/huron01.asp.

As there seems to be sufficient evidence that this was known and covered up by big pharma in concert with the medical profession who is on the take from big pharma, the jury awards could be huge.

So get the trial lawyers to pick this up, and force medical professionals to give the issue the respect it deserves, or see their finances destroyed - It is the only way to change the system.

Denning's own research:-

http://www.rxpgnews.com/article_1709.shtml


Re:  Attorneys involved
I dont agree actually.It has been pointed out to me that doctors give an opinion I see the only way to push things is a political campaign letters & out on the streets thing.. a bit of flag waving , shame them

Re:  Attorneys involved
Well mold in buildings litigation has gotten considerabel national attention in recent years. If fungus in buildings so unhealthy, then how much more difficult is it to prove that a substance which causes fungus to grow in the body (antibiotics) is detrimental to health.

Re: Time to get the PI Attorneys involv
They'll claim they didn't know.....or that they were only practicing the standard of medicine....

Something needs to be done, but it will take a sharp lawyer to make it happen.
Re: National attention? to Paul UK
HI Paul,

There is strength in numbers.... We also need resources. Like you said, most do not have the resources to fight candida and co-infections.

I hope Christine reconsiders and accepts your offer to help.

How did you get the Candida to leave you and keep it from coming back? That's the tough part for me...to keep it from coming back. Was it through long-term AF use?

As you fight the co-infections, do you need long-term AB? IF you take AB will the Candida come back?

How is your wife doing with her asthma? Is it still gone?
Re: National attention? to Paul UK
Pace, Long term AFs were the answer 18 months continuous [Its all in my site] Fluconazole & Terbinafine were the systemics I used.

do you need long-term AB? IF you take AB will the Candida come back? Yes I now need long term Abxs it looks like lyme ! I do take ARBs not the full inflammatory blockade dose just a maintenance dose now The word is it takes two years of treatment , And no candida has not returned Abxs help gut function , I take it that I have pathogenic bacteria its a common condition . I think because of the immune downgrading this thing is capable of I need an immune modulator. The fact that many feel an improvement when hosting a "guest" [colds & the like] infection does fuel the argument for some sort of an immune modulator to overcome the anergy we display . I thought perhaps Interleukin-6 (IL-6) would suit , but the chances of obtaining that are slim to say the least. This maybe the answer, Also we need to know how restore Lactic acid bacteria in the gut.
http://news.bbc.co.uk/1/hi/health/4274430.stm & http://my.webmd.com/content/Article/112/110428.htm?z=1728_00000_1000_tn_04
My Wifes asthma never went it improved on AFs but treatment stopped when the consultant pulled the plug [web site again]


Re: National attention? to Paul UK
Hi Paul,

I read your website awhile back. Guess I need to refresh my memory.

I think I should have been on AF for 12 months. The longest was 3 mos and it was the best I felt. However, lack of resources made it impossible to continue. When I didn't have the resources, I had the dr. When I didn't have the dr., I had the resources.. Isn't that life sometimes?

I hope you're able to get the puzzle solved with your illness.
Re: Why doesn't this get national attent
There was a brief moment in the 80's when it almost was accepted. This is when C. Orion Truss's book, The Missing Diagnosis came out and just a little later Dr. Crook's book, The Yeast Connection came out. THen there was the flawed study that came out which supposedly "proved" nystatin didn't make any difference. The trouble was the control group taking Nystatin didn't follow a sugar-free, low carb diet. So many medical professionals reference this study. It's also listed on quackwatch.com However, no one has ever proved that it doesn't exist either. Doctors accept Candida in immunocompromised people but rarely in immunocompetent people.

If Steveuk's diagnosis of Candida had been accepted, it would have been dealt with very seriously. He would have been admitted to the hospital to the area of his greatest need, food poisoning would probably be gastroenterology or infectious diseases and then treated for both conditions.

Some people have tried to contact Oprah to have her give it some national attention. She responded once to someone that she covered this back in the 80's and even had Dr. Crook on the show. She'd been there done that already.

Polly posted something about a new study that did show Nystatin made significant improvements. Not sure why it's not making headlines....
Re: Why doesn't this get national attent
i went into hospital for food poisoning last week, and the doctor asked me if id got any other medical problems, so i told him id got candida, needless to say he didnt believe me, he just said candida only occurs in people with aids.

Re: Why doesn't this get national attent
because they can't do much about it anyway...

Re: Why doesn't this get national attent
Thats bull! We landed a space craft on the moon almost a half century ago, we CAN beat candida through technology. The problem is that individuals with the intelligence to do so aren't aware that this is a problem! We need to make noise. We need to let people know we are suffering. We can't just keep sitting around and taking it! As some one else said, there will be others who will end up in the same boat as us, and we owe it to them and our selves to do something!

Re: ?
I don't know, but it sucks telling people you have a candida problem and then seeing the look on their face. I usually make something up which ends up sounding just as crazy. Maybe someday. I have had a few people say, "oh, I've heard of that"

Re: ?
I also wonder why we don't hear more about Candidiasis. People look at me like I am into a secte when I try to explain my problem.

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