Weak Leg
sheryl
back in 1999-2000 when iw as very sick with lyme, guess what 2 of my main symptoms were? weak leak and swollen lymph nodes (and knarly fatigue). the weak leg got so ad i thought i had MS ut alas, since treating lyme since 2000 i have never had a repeat of the weak/num leg which was constant for months.
sheryl if your iopsy is normal i urge you to take the lyme prognosis seriously. find an llmd and even perhaps start the c-salt treatment. the sooner you start with treatment the etter chance you have for recovering fully.
I get the weak legs too. For me it's
related to T3 thyroid hormone. If I
don't supplement T3, I can barely climb
one flight of stairs even tho my
legs are muscular.
Now that it seems I have Lyme, I wonder
if that is to blame, if it might be
inhibiting the T4 to T3 conversion.
Anyone have any good links to Lyme's
impact on thyroid hormones?
I'm seeing Dr. Klinghardt for lyme, and one of the first things he did was put me on both armour and T3. He believes T3 deficiencies are huge with lyme... he went as far as to suggest that borrelia physically blocks thyroid hormone receptor sights, or some such thing. I didn't fully understand this and time ran out before I could get an adequate explanation. At any rate, he felt supping T3 would help.
He also believes jaw infections are a huge problem with lyme, and that the infections in turn place a huge strain on the tonsils and thyroid. He's having my wisdom teeth removed... the doc who did the removal claimed I had a huge amount of dead bone in and around the two infected wisdom teeth removed thus far.
Note that I also have another impacted tooth that will have to come out some time soon.
Also note that thyroid problems are highly associatd with MS, and the links of lyme to MS are becoming too numerous to ignore. No doubt in my mind that lyme messes up the thyroid big time.
I wish I had links ut that was one of the first things to go for me, is the conversion. Lyme really does a numer on the thyroid so that is proaly part of the reason as that is where conversion happens.
Wow. Everything sure it pointing to Lyme.
I so want to haVe a baby. Is the fight against Lyme life long, or is it possible to treat it and get on with life?
You could likely answer a lot of questions within days if you try the s/c protocol. If you are uneasy with it for some reason, you could stop after a few weeks perhaps. I am starting to believe that s/c is likely the MOST accurate dx for lyme disease, far more consistent than Igenex or any other testing. Perhaps Bowen is adequate, but the jury is still out there.
Just try 1 gram of Real Salt combined with one gram of ascorbic acid, taken once a day. If you can handle that for a week increase another gram of both. If you cannot handle 1 gram, reduce it to one half gram, etc.
The protocol is not entirely agreed upon in my mind. I like the idea of taking 1 g of each per 10 pounds of body weight, although vitamin C bowel tolerance might not allow it. Currently I can only take about 7 to 9 grams a day without generating the runs.
I hate to disturb anyone, but thinking back I wish someone beat me over the head with this information 5 years ago when I falsely tested negative for lyme and thought I was in clear. That allowed the lyme to progress, which totally sucks!!! So to be clear, you appear to be screaming lyme... I would be stunned if you didn't have it, and for that matter I believe the heart and other symptoms point to babesia as well. You are going down a very similar path to others of us.
So I think it's time you accept the truth that diligent work is now required to rule out lyme. Lyme becomes much harder to treat the longer you let it go, and all of the people in your life need to you take responsibility here, as things will continue to degrade if you have lyme.
dpd - I recall your name here from
years ago, back when I was pursuing
this from a candida angle.
Were you doing the candida treatments
back then too? My Lyme test was negative
like yours, which threw me off course.
It sounds like you and I have been
travelling the same path, at about
the same pace.
Hi Steve,
Yep, I've been here a while, and I've been treating candida, more or less, since October of 1999.
It's "mind bogglingly" annoying how hard it is to get dx'd properly these days, and I couldn't be more dissappointed about how long it took to get the lyme dx. I actually discussed the possibility of lyme with a rheumatologist around March of 1998 and he totally blew me off in the most condescending of manners.... telling me in that all too familiar tone "you don't have lymmmmmmme" without of course performing a single test.
I have gone a long way at beating down my gut candida with homemade 24 hour probiotic yogurt, cultured veggies,and a low carb diet. However, systemic antifungals still cause a horrible reaction... I believe I have terrible systemic fungal issues still, perhaps even aspergillosis. I react strongly to aspergillus skin tests, and when Mercola's office tested me they couldn't desensitize me. This has lead other lyme literate doctors recently to suspect aspergillosis. Klinghardt tested me using his muscle testing and did indeed claim to believe I had an aspergillosis problem, as well as systemic candida.
So indeed, I've been dealing with fungal problems, and now it's clear I have borreliosis and have tested positive for babesiosis. I'm starting to believe that candida overgrowth is simply a component of lyme disease, as is heavy metal toxicity and at least one tick-borne coinfection on top of borreliosis. Note that I have had a 4+ giardia infection, massive HHV-6, and I have been passing liver flukes for 8 months or so.
I'm hoping that treating all of these infections concurrently, then pursuing Dr. K's chelation on an Andy cutler schedule, and moving onto Dr. K's urine therapy to renormalize the IS will do the trick here. This is Dr. K's big picture approach... and it includes anti-tick borne AND antifungal approaches combined.
Wow, you've been thru a lot. At least
perhaps we're contributing to the
knowledge base about this stuff.
One difference between us is I get
little reaction from systemic
antifungals. Diflucan was about the
only one that did anything, but then
it was only a tiny amount of herxing
and a small reduction in symptoms.
I did the Cutler thing for mercury,
but that made little difference, in
fact it left me slightly worse.
The Marshall Protocol says Lyme causes
Th1 immune overexpression. Mercury
tends to supress Th1, so removing my
mercury might have made my Th1 go up,
and that in turn made me feel worse.
Best wishes for making health progress
in 2006.
You could likely answer a lot of questions within days if you try the s/c protocol. If you are uneasy with it for some reason, you could stop after a few weeks perhaps. I am starting to believe that s/c is likely the MOST accurate dx for lyme disease, far more consistent than Igenex or any other testing. Perhaps Bowen is adequate, but the jury is still out there.
Just try 1 gram of Real Salt combined with one gram of ascorbic acid, taken once a day. If you can handle that for a week increase another gram of both. If you cannot handle 1 gram, reduce it to one half gram, etc.
The protocol is not entirely agreed upon in my mind. I like the idea of taking 1 g of each per 10 pounds of body weight, although vitamin C bowel tolerance might not allow it. Currently I can only take about 7 to 9 grams a day without generating the runs.
I hate to disturb anyone, but thinking back I wish someone beat me over the head with this information 5 years ago when I falsely tested negative for lyme and thought I was in clear. That allowed the lyme to progress, which totally sucks!!! So to be clear, you appear to be screaming lyme... I would be stunned if you didn't have it, and for that matter I believe the heart and other symptoms point to babesia as well. You are going down a very similar path to others of us.
So I think it's time you accept the truth that diligent work is now required to rule out lyme. Lyme becomes much harder to treat the longer you let it go, and all of the people in your life need to you take responsibility here, as things will continue to degrade if you have lyme.
I'm uneasy about the c/salt thing right now because I am doing primal defense rm 10, they are helping me in a huge way and I don't want to disturb it. It has stopped the heart problems 100%. I have finally gotten to the dose I was working up to. I need to maintain that for 3 months.
So, should I even shell out the money for the igenex test? What if I spend all that money and it says I'm fine?
It has also been burned in my brain that vitamin c suppliments of any kinds cause cancer. I worked for Michio Kushi for years and taking vit c (other than food) is a HUGE no no...I do take it here and there...but never on a daily basis like this.
No I don't have a link. It's the macrobiotic way of thinking, you could probably google around macrobiotics vitamin c etc..I'm going to have to do c/salt no matter what I have heard of vitamin c. I'm scared to death of eating more antibiotics...I'm about to rip my hair out at the moment!
Sheryl,
This is bizarre news to me also. Can't believe that vitamin C is considered a carcinogen by the macrobiotic community and I haven't heard of that before. My initial thoughts are that this notion of vitamin C causing cancer is preposterous, but I should investigate further. It seems quite the opposite, given that vitamin C is a critical antioxidant... pretty much seems ridiculous the more I think about it.
Also, please don't pull your hair out.
So much information about chronic illness is coming to the forefront. I think we should all be happy as I feel considerable progress is being made at this time in understanding what's going on with many of us. And if s/c is a big part of answer, given it's cost, what an amazing development. We need to look into this cancer thing, but still sounds like scare-mongering to me.
From what I remember, and I have turned my back on macrobiotics for the most part..is it has something to do with vitamin c pills/capsules causing a rusting effect inside leading to cancer. Too Yin or something. It's one of the things that stuck in my head from those days.
wow never heard that. any link? i dont want to stay on this dose of c for my life ut again i am fine for weeks and then am herx, making me think it is only acting against the lyme and not throwing my system off.
sheryl
the short answer is it depends on the person. some folks recover just fine others don't. ut i have to say that the vitamin c and salt treatment is no other like i have ever done. i *know* that if i had taken that treatment 5-6 years i go, i would e cured. it gives me herxes like nothing else which means the como kills the uggers. please read dpd's post elow aout suggestions. i could not recomment it more.
if there is *any* possiility of lyme, it can e transmitted to your kid who can go through hell or worse ecome autistic. committ yourself to a treatment now and you may e ale to have a healthy kid in a few years!
i am going to post a 6 month report soon and i look forward to letting people know how i am doing after a year on c-salt.
I wish I had a few years...
